Sunday, January 6, 2019

Vision loss and proton therapy started

When I reported to my radiation oncologist that I was having big problems running into things on myleft hand side; Like people standing in the supermarket, signs in the middle of an aisle You name it. He did a quick check of my peripheral vision and found that I have pretty much lost the left hand side of my peripheral vision.He then talked me into starting up the aAvastin again It has been 6 weeks since my last infusion and  my mouth and nose finally stopped bleeding.I am not looking forward to Continuing this and suffering the effects of the proton therapy at the same time, but the fight continues.They also put me back on decadron a drug that I definitely do not like.I have had three of the 25 proton treatments. The treatments are not painful at all , it is very uncomfortable being strapped into that machine,andthe morning after I wake up very confused and disorientated. Lastly,I have Lost A lot of the strength in my left hand limbs Similar to what I lost after the surgery in 2016 and eventually regained through physical therapy.

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