Tuesday, October 25, 2011

Neuro-oncologist Visit

I got the 8th cycle prescription for Chemo today. I am excited to only have four months to go after this. Four months. I told him the Provigil stopped working, he doubled the dose to 200mg/day. Had a couple questions for the NO:
  1. Should I be taking Decadron and Provigil at the same time? No. 
  2. Can the increased blood pressure pointed out in the MRI be the cause of my headaches and eye pain? Probably not. The pressure increase is around the surgery site, and is probably caused by blood vessels cauterized during the surgery. Doubtful that that pressure would make it all the way to the eye.
  3. Would blood pressure medication to help with my headaches? No, this  would probably cause more issues.
  4. Ginseng to increase energy? Got typical western medicine response. You can try it if you want, but can't recommend dose because he is not sure what the active ingredient is, if it has one ;( I guess I'll give it a try. 
A lot of digging to try to get some sort of relief on the continuous headache. The NO is NO help. He seems to have the attitude that this is par for the course and there is nothing I can do about it (Man up!). That sucks. This guy is an expert in brain tumors. Any BT patients out there please chime in if you found anything, other than narcotics, that helps.

Sunday, October 9, 2011

7th Chemo cycle done

On schedule this time, its Sunday afternoon and I am finally feeling OK. Thursday and Friday were pretty rough ZERO-energy days. I continue to have these strange dreams/sensations/nightmares where I wake up from sleep mentally but my body doesn't, like being paralyzed.  Provigil - The med I started to help get me out of a daze. The jury is still out on this. I was only taking it a week before the Chemo started, and during Chemo week I take decadron which has a similar side effect. Actually I need to ask the doctor if I should even be taking Provigil with Chemo. Thanks for reminding me. The week I took it before Chemo I did not feel the exhaustion, but I still had issues with headaches.