Tuesday, May 15, 2012

3 Month post-treatment MRI seems clean

I had an MRI today. Oncologist said it looks OK to him, but will wait till report from Radiologist. This waiting means nothing because if the Radiologist disagrees, the Oncologist has seniority.  So I'm good.

What about the increased headaches? Take more tramadol.
What about the tingling left hand side of my face? Well, this is more interesting, but he did not seem concerned about this. He said that my brain is 'changing'. Changing can include things like long-term results of the radiation, not necessarily tumor growth.

I think he is looking for much more serious issues, like not being able to move a limb or feel my hand.

Well that's fine, but it is maddening to know I have a BT, have a screaming headache, and my face tingling like it fell asleep. I guess, I know it can be worse.

I am wondering why he even wants to see me if I can walk in.

p.s brain fart - this was originally posted as "6" months post-treatment, its only been 3.

Sunday, May 6, 2012

How can I tell if I loose my Judgement?


One of the more disturbing symptoms of brain tumors is 'loss of judgement'. Seeing Brain Tumors are a degenerative disease, I am always on the lookout for new symptoms as an indicator that the tumor is progressing. Physical things like numbness, loss of vision, weakness are easy to recognize. I take a look at mt left hand daily to make sure I recognize it as mine. Psychological symptoms are another story. It scares me because I don't think people realize when they are loosing it. I do a lot of reading on message boards and blogs of fellow BT survivors, and I occasionally see messages that are obviously not constructed properly, like "du,..um in blay, cot". The author probably thought what they wrote made total sense.

At work, I make a habit of reading messages I send to make sure they are what I intend to say. I get interrupted a lot, so I always double check before I hit send. The other day I noticed a message I sent:

"some 096-9XXX files don’t habe the .ini file attached. I recall they are stored somewhere on G:\, con you point me there?"

"con", "habe" Are obviously not correct. How could I mess up such a simple message? "I" was probably not there what I hit send.

Personality changes are another symptom of BT's. I have consciously made some personality changes. The prospect of having your life cut short changes your outlook on life. In some situations I now take a 'I don't care' position. Living with almost constant pain also makes me short-wicked. But there are some things that happen that I don't understand. I relationship at work has fallen apart to the point where a co-worker will not communicate with me. I pride myself on my ability to get along with everybody. I gave him an general apology for what might have caused this, but still nothing. I worry about being discriminated against because I have a BT. Do people think that I can't perform engineering tasks because I have a BT, and just write me off? "I" think I can do my job, but I'm not 100% sure who I am anymore. Perhaps it's 99%, like a crack in the dam.