I had quite an episode on Monday night. I left work early with a massive headache that came on suddenly after lunch. I laid down for 2 hours at home and it was still screaming. I talked to my sister, and she suggested taking 2 Norco (narcotic pain killers). No help at all. My head hurt so much that I could not sleep - I was up all night. About 2-3 am the I started to vomit. Not pretty.
I called my doctor at 8 am and they said to come in, probably need a cat scan to check for anything serious. Holly carted me down there and we saw the doctor and he said, 'I need the cat scan before I can say anything. Go get the scan and WAIT there for further instruction'. I clarified that he wanted me to wait in the imaging center for him....he said, 'oh yea, once the scan is done the radiologist and I will discuss the results and they will tell you what to do'. Well, once the scan was done the technician told me the radiologist was not even in the building. Lets not forget I have a screaming headache and did not sleep the night before. Holly and I head back up to doctors office and I ask at the front desk what is going on. The very nice fellow goes and checks and tells me that the radiologist should have told me that there was nothing wrong and that I could go home, but since I was here, the nurse would come talk to me, please have a seat. We were waiting there for about 10 minutes when the nurse comes out and get the people sitting right next to us - totally ignoring us. Holly and I got up an left. I had enough. The doctor calls me on my cell phone 2 1/2 hours later and tells me they just realized that they never followed up with me about the scan. He continued to tell me the scan did not show any serious issues he was worried about, so there is no need for concern. Lets not forget I have a screaming headache and did not sleep the night before. I say, well great what am I supposed to do about my problem? "Man up and plow through it" he says. "What about my headache?" I ask, "Take some aspirin" he says. I make one last plea - "Is there any other class of medication I can try?". He says to try 2mg/day of the steroid Rx. for the next 3 days.
This was another lesson in what 'Fighting Cancer' means.
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I really sympathize with you. Not only do you have a raging headache but you don't even get the courtesy of the physician to discuss treatment. My husband's oncologist kept telling us that my husband needed to get off of the decadron (he was taking 1 mg/day) but he was getting headaches. He went to 1 mg every other day but then he started getting sharp pain in his temporal area on left side where his tumor is. The pain was severe and coming every few seconds. I gave him 2 mg and the pain stopped in a few minutes. Since then he has been on the 1 mg. I am going to try and wean him off with the 1 mg every other day but the 2 mg did help alot. The oncologist says to get off the decadron and the radiation oncologist says to stay on the 1 mg for another few weeks. Who to listen to?????
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