Today I had a 3 month MRI to check 'progress'. The doctor said there was 'no change since the previous MRI". In other words (mine)...good news, the tumor has not visibly grown and no new tumors have developed!
I asked the doctor to show me the MRI and point out what features he is looking at. No doctors have offered to do this to date, and I kinda wanted to see him explain what he was looking at. What I thought was the tumor he explained was a fluid-filled void left from the surgery. This left me very confused because I was told in no uncertain terms by the surgeon that he only took a biopsy and resection was not possible without compromising functionality. Then he showed another picture that he explained was the diffuse part of the tumor, and he explained this is where the look for new tumors to form. I could not see what he was talking about and he said that the resolution on the MRI is poor and to get better resolution the magnet on the machine would be too small to fit my head in. I have looked through ALL the images (several hundred) from every MRI I have gotten and there are much better pictures that seem to show where the problem is - but who am I to argue? If you have been following this blog, you know I went into this journey with a general disdain for the medical field. Its not getting any better. I have always felt that doctors will agree with anything you complain about, assign it as a condition, and treat you for it to keep the medical machine running. I wonder where I would be today if I never complained about my dizzy spells.....
Subscribe to:
Post Comments (Atom)
That is truly great news. How are feeling since you stopped taking the 2 mg of decadron? My husband just finished his 2nd round of temodar and feeling very fatigued. He is taking 1 mg of decadron but he should start tapering it soon. the 1mg has never caused him any sleep problems but I can see that he has less muscle mass.
ReplyDelete