I picked up the prescription for the Temodar (Chemotherapy pills) today. Don't tell anybody, but I only got 400mg/day dose (The Rx was for 405mg/day). The goofy insurance would have counted the extra 5mg/day as another prescription, and charge me another copay. My cheap ass was not about to pay another $10 for a 5mg pill when I am already taking 400mg.
To answer a question from the comments, the dose increased for two reasons, the first was a 'ramp up' from the initial dose, and the second was an adjustment for body weight. I should stay at 400mg/day from here out unless something goes wrong.
To answer another question from the comments concerning exhaustion, my doctor said to try other forms of caffeine, even just less coffee. I bought some caffeinated green tea and have a cup after lunch. That seems to be helping out. He also has the opinion that the exhaustion is a side effect of the radiation, not the chemo. The side effects from the radiation can take 2-3 months to subside.
Now on to the subject of this post. In the past couple of days, my appetite has taken a nose dive, my stomach cramps have come back and the metallic taste in my mouth has returned. I believe this is all from anxiety from my does going up to 400mg/day. Things were rough on 300mg/day last month. Dang rat poison.
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I sure hope your increased dose doesn't cause more symptoms. Please post how you are tolerating the new dose. I have alot of anxiety about how my husband will tolerate his first round especially since we have to fly to my daughter's graduation. Was thinking of asking his oncologist if we could start next month after we come back. The temodar is held if the blood tests show a drop in values. Do you know of anyone who has the temodar held for a month?
ReplyDeleteAs far a delaying the Chemo by a month, I would ask/tell your doctor your wishes.
ReplyDeleteJust sending my prayers that you did not have a difficult week with the 2nd round of chemo.
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