More strange problems, another issue with doctors office

Shortly after the week-long eye pain episode last week, I had another rough week. Recall that my initial symptoms included proprioception seizures, where I would not recognize my own arm as being mine. Friday night after the eye thing, in the middle of the night, I woke up and had a similar sensation with my left arm and leg. I would move them to convince myself my limbs were still there. I though I might have been dreaming, so I got up and moved to the couch. Same deal. It was not as intense as my initial seizures, but was very disturbing. The next morning, I got up and my left arm was in major pain. It was like carpel tunnel, it did not hurt until I tried to move. Simple tasks like putting on a belt resulted in cringing pain. I even howled in pain a couple of times. I would have to hold my arm against my body while walking. This last Friday I woke up and the problem was gone. It came on overnight, lasted a week, and went away overnight.

Adding to this, the psychological fear that I might be 'turning the corner' or this problem might not go away is hard to deal with. Its hard to not think about it every time the pain shoot up my arm. Shortly after diagnosis, my doctor told me that I would lead a relatively normal life for a few years, then a string of strange health issues will arise over a few months (turning the corner), then the tumor will take control. So every time something strange happens, I worry. It is very easy to blame any health problem on a brain tumor. 

My sister implored me to call the doctor and tell them what is going on, just based on the eye problems. I called the nurse and told her what was happening. She talked to the doctor, and the doctor said he wants to examine me before recommending any action. I told the nurse it could wait till the  appointment scheduled for the following Tuesday. When I looked at the appointment schedule from my last visit, I noticed the date was for next week! I called the scheduling desk and told them that I am supposed to see the doctor every 4 weeks to maintain the 5/28 Chemotherapy schedule, and they gave me an appointment 5 weeks out from my last appointment. The ignorant person they have answering the phones at the cancer center says the doctor instructed an appointment 'around' four weeks, and the doctor was booked on the 4 week mark. Rather than solving the problem, the scheduler defended their actions. It took every thread in my shirt not to explode at her. I calmly asked if I could get an appointment the following day and she says sure. They teach my kids in school to be 'problem solvers', apparently this one missed that day.

So my next oncologist appointment is Wednesday rather than Tuesday. I get to tell him about all my trials and tribulations, and get my LAST Chemotherapy Rx.