I had an MRI yesterday - Good news - No new growth. Here is the doctor-speak from the radiologist:
IMPRESSION: In comparison to the prior MR study dated 5/15/12 there isinterval mild decrease in size of the small nodule of enhancement alongthe anterosuperior wall of the resection cavity in the right parietallobe. There is associated mild decrease in the increased cerebralperfusion demonstrated on the prior MR study dated 2/17/12 in the samearea. No new areas of abnormal enhancement are present.
The 'Resection Cavity' he speaks of is where they took the biopsy from, a relativity small part of the tumour. I have a question into them about whey they never comment on the much larger (10x) diffuse area. Its kinda weird that they focus on "small nodule of enhancement along the anterosuperior wall of the resection cavity". This area is smaller than a pea compared to the diffuse area that is the size of my fist.
The doctor was not concerned about my advancing tingling in my face. Again, I think he is happy to see me walking around. We decided to stop the Tramadol for the headaches. He is of the opinion that any medication that would help this is going to have undesirable side effects. I told him about the metaphysical things I have been trying (mediation) and surprisingly he said that was a great idea, much better that using medications. He also said acupuncture 'can't hurt' - what do you have to loose?
Lastly, I asked him about the frequency of these appointments and MRI's. To me its pretty obvious that I am doing great and getting a MRI every 3 months seems like a waste of time and money. He said that the plan is to stick with the quarterly exams for up to 5 years, then go to once a year., assuming my condition does not degrade. This tells me that my current health has little to do with the probability of further growth, and his concern does not subside till the 5 year mark. Putting the pieces together, Remission starts at 5 years. I am about 2 years past diagnosis and looking good. I can live with that.