Proton Complete, Just Avastin

Well I finished the proton therapy last week.It was a lot easier to handle then IMRT back in 2010 I think because of The lack of chemotherapy While doing the radiation.

So as it stands today the only therapy I am doing is the Avastin. The plan is to Continue this Until either the MRI shows that there is more progression or I cannot tolerate the Avastin. So far the advanced and side effects have been minor. Some nose bleeding and problems breathing Very similar to What I've experienced in the past.   I need to keep a close eye on my blood pressure It went up a little bit last time and it is one of the major risks of this drug.

One thing that I did not cover in any previous posts was That the radiation oncologist had Told me that the last progression that was seen that took out my vision was probably because of an effect He called " Avastin rebound " that causes tumors to GROW when stopping  Avastin! He badgered me for making the decision stopping it. This was not the first jerkish treatment he gave me and I have since told his office I will not be seeing him anymore.
On top of it when I talk to the Neuro oncologist about this rebound effect, he said the growth could have been from this effect,  but it was far from  a matter of fact. Two doctors, same hospital, two totally different messages. Nice. Next of this is the fact that eventually I am going to have to stop the avastin. Disk leaves a very dark cloud on the horizon When that day comes.  Hopefully the circumstances around the future decision to stop the Avastin are much more serious than the possibility of any possible rebound effect. yeah 'hopefully'. I've had 9 Infusions so far, and the plan is for one every three weeks.

MRI coming early March. This MRI will give us an indication if the proton therapy worked and if the Avastin is working. If we see progression here It indicates that neither worked and the decision to Stop Avastin Will be forthcoming leaving a  lack of any treatment... watch and wait they call it.

Progression continues

Here is a brief summary of the past couple years followed by some recent developments
From June to August in 2018 MRI's revealed a small spot that Grew aggressively Around the motor strip
The symptoms around this time were left side weakness, Vision problems and mild confusion
In September I started avastin and dexadron steroids
TheMRI in October looked promising - 
Open in November I started having breathing and bleeding, abd cramping  problems After 5 Avastin treatments.
Pin MRI in December revealed that the tumor has grown another 15%
In January I started having Vision problems causing me to run into things.

Citing the progression of symptoms while on Avastin, I stopped getting it.

In January  '19, I started the proton therapy and re-started the avastin
Mid January an MRI revealed that the tumor in the vision part of my brain got 'a lot' bigger in a few weeks, and the tumor by the motor strip also progressed.
  the radiation ation oncologist decided to increase the areas of the brain that were being treated to account for the larger tumors.

Vision loss and proton therapy started

When I reported to my radiation oncologist that I was having big problems running into things on myleft hand side; Like people standing in the supermarket, signs in the middle of an aisle You name it. He did a quick check of my peripheral vision and found that I have pretty much lost the left hand side of my peripheral vision.He then talked me into starting up the aAvastin again It has been 6 weeks since my last infusion and  my mouth and nose finally stopped bleeding.I am not looking forward to Continuing this and suffering the effects of the proton therapy at the same time, but the fight continues.They also put me back on decadron a drug that I definitely do not like.I have had three of the 25 proton treatments. The treatments are not painful at all , it is very uncomfortable being strapped into that machine,andthe morning after I wake up very confused and disorientated. Lastly,I have Lost A lot of the strength in my left hand limbs Similar to what I lost after the surgery in 2016 and eventually regained through physical therapy.