We got back from FLA today. Very nice time, great food, better weather than Chicago.
Holly and I went to pick up the Chemo pills today, and we kinda got screwed on the copay. The prescription is for 150mg/day, but the pills come in 140mg and 5mg, so they split the prescription into a 140 1x/day and a 5mg 2x/day. Well, that's all fine and dandy until they charged me two copays at $50 each. I cant complain too much, the insurance company has picked up a lot, but I need to see if there is a way around this if I end up on this for the next several months. There is also a problem with the Bactrim prescription (anti-nausea), the insurance company will only allow 10 pills per month, but the prescription is for one every day. The doctor sent a letter of necessity to the insurance company, I need to follow up on this.
The increased Keppra dose has not helped the cognitive seizures. While in FLA, we went out to eat and I had a doosie. I was feeling woozie and had to excuse myself and go outside. I was out there for 5 minutes or so with my head resting on a railing when I looked up and forgot where I was. It only took a couple of seconds to figure out where I was, but OMG, that is a weird feeling. Holly came out and got me about 5 minutes later and I was able to have dinner without any more problems.
That was the only major problem I had last week. Day to day, I just have headaches and exhaustion, but I am able to get around and seem like a normal person. I think the only thing that shows is when I have a very short, very painful headache that Holly and I have been calling 'zingers'. It feels like a fishhook pulling something in my head behind my right eye for 1-2 seconds. This happens 2-3 times a day, and when it does, I wince in pain. My son has seen this happen and becomes very concerned. I'm sure people have seen this in public I just think I am freak.
The radiation appointments are late in the day for now. We will get an earlier slot once one opens up. I'll let you know how it goes...
See if you can mail order the prescriptions from the insurance, should be a 2 month copay for 3 months of drug.
ReplyDeleteDeb and Doug